We now had to adjust ourselves to a life of constant monitoring and medication to be given twice daily and somehow we adapted to this way of life and it became our "norm". This was not to be the last seizure Kyle would have as on the 22nd of December 2006 he had the worst one to date and we were on the merrygoround again. Fate was smiling on us that day as luckily a very good neurologist from Crumlin had his clinic in Tallaght hospital that day and Kyle's paedatrician requested to see him so he could examine Kyle. Thankgod he did because that was the day this fantastic man took over Kyle's case and we haven't looked back since, it was also the day that Kyle had his last seizure so we are now celebrating him being three years seizure free on Tuesday.
We began to realise that more than epilepsy was going on with our son, his speech was very poor, he had lots of words but could not put them into sentences, his balance was clumsy and he always banged into things and he dropped everything in sight. We decided to go to a speech therapist to see what was going on and she very calmly told us he needed a educational assessment to see how much he understood. This was a blow but we duelly did what she said and went for the assessment.
This was to be a very difficult task for Kyle and in the end he could not be tested as she felt he didn't understand what was being asked of him, I don't know what happened me during that time but it was like a lightbulb went off in my head and I blurted out "Do you think he is autistic" She looked at me and said well thats not for me to say but things can be done for autism and its not the worst thing in the world. She may as well have come out and said it and as we got into the car I faced my husband who was shellshocked and said Our child is autistic, we sat in silence on the way home and as soon as I got there I went straight onto the internet to look up Autism, lots of thing hopped out of the computer at me and I realised Kyle ticked a lot of boxes. My heart sank, its bad enough that the poor little thing has epilepsy but dear god Autism as well, This was just too much to bear and I retreated into myself, barely functioning I started on the round of speech therapy while we waited for a assessment from the eminent Prof Fitzgerald. We got it sooner than we expected and before we knew it we found ourselves in a garden shed at the bottom of his garden, This was to be a experience and one that I will not forget.